Hello,
My name is April, owner of this website that I run with my husband Michael. I have not posted in a while because I have been going through a lot of medical issues.
It has been about 3 months since this all started. I began getting sick (nauseous and vomiting) for about a week and a half. I thought I had the flu, but then I became jaundiced, so I went to the hospital ER and they admitted me, running a bunch of tests. They did a procedure to put in a stent because of a narrowing of the biliary tube that comes off the liver. That did not work.
I was still yellow, yet I was released from the hospital anyway to give the procedure a chance to work and improve my situation, but it didn’t. In addition, they found an infection there too, so I was put on strong antibiotics in the hospital, which they also sent me home with.
Shortly after, I was sent to an Oncologist and they did more tests and put me back in the hospital. I then had another procedure to check the placement of the stent, with a consideration to put in another one. They ended up not putting in another one; just checked it and did a biopsy of the area again, which did not show anything. So they put in an out-port to get the bilirubin to drain.
The port that I have is coming out of my stomach and I need to flush it twice a day and re-dress it every couple of days. That began working and I was looking better. The bilirubin has almost come down to normal now and I am no longer yellow. However, they are thinking it is a cancer tumor pressing on the tube and making it narrow. If that is the case then they want to either do a liver transplant or a liver resection surgery and they would take over 75% of my liver out, this would also include removal of the gallbladder also. It is major surgery and I am scared of either of these possibilities.
There is an unknown mass (tumor?) that is more or less strangulating the veins and arteries beneath the liver that leads to and from the stomach, pancreas, and gall bladder, which is what is causing all the problems. At this point, they do not have a clear idea of what they are dealing with. I am been referred to another liver doctor for a second opinion of what we may do about it. I will most likely have procedures with this new team of doctors as they think they can get a biopsy of the tumor so that we can move forward with a treatment plan.
Although they tell us that it is most likely cancer, we are trying to stay positive, hope for the best, and take it one day at a time.
I recently just had to have another procedure to replace the port line because it cracked and was leaking. That was very painful, but not as bad as when I had the line first put in (THAT was REALLY painful). I am just trying to keep the daily pain and nausea at bay and do what I can to get through the day. Persistent nausea makes it difficult to eat and the pain makes it difficult to do, well, anything.
As I am sure you know, with all these appointments and procedures, there are a lot of co-pays. I have decent insurance, but it is still a lot. I do not make much money from the website. I would like to some day, but currently am not. Now I can’t even work on it due to my situation.
I am taken out of work at this time (yeah, I have a regular job, too) because of all the pain and nausea, so finances have been really tight… even before all this started. The other doctors that I am seeing are an hour-and-a-half away from my home. We are asking for small donations, the money would be used to supplement lost wages, co-pays for office visits, procedures, prescriptions, as well as paying for gas to-and-from doctor’s appointments. Anything you can give would be greatly appreciated.
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